Several years ago, my husband, Larry, and I cared for his mother, Audrey, who had Lewy-Body Dementia. It was a rough road. In the beginning, she could still live in her own place with meals delivered to her. But then she became more confused and had delusions, hallucinations, and paranoia. Lewy-Body Dementia has some different characteristics from Alzheimers but some similarities. They are both dementing diseases but Lewy-Body Dementia isn't as well known. More recently it's been spotlighted because of actors Estelle Geddy and Robin Williams who had the disease. If you'd like to learn more about Lewy-Body Dementia, check out a very important organization and informative website: Lewy-Body Organization
Tweet this: "When we realized Audrey could no longer stay alone, we knew the inevitable was here: she would live in our home."
When we realized Audrey could no longer stay alone, we knew the inevitable was here: she would live in our home. As that reality sank in, I sat on our patio watching the sunset and moaned, "My life is over." Over the two-and-a-half years she lived with us, we not only learned a lot about the disease, we changed through God's transforming Holy Spirit.
|Audrey and her great-grandson|
1. Don't take your elder's behavior personally. At a support group, we found out that many people who care for the demented commit suicide. The care is so great but even more importantly, the dissatisfaction of people with demented disease causes the care giver to think they aren't doing a good job--and aren't a "good" person. We must not take the demented person's behavior personally. It's not a comment against us, it's the corrupted perception of the demented person.